After talking to the District Nurse, and making a few phone calls, it was arranged for Stephen and myself to see the Professor in charge of the hospice early this morning.
Professor B took detailed notes, gave Stephen a physical examination - asked oncologist at hospital for copies of Stephen's medical records, including results of latest CT / MRI scans, and arranged to see him again in 2 weeks. He doubled the drugs - arranged for a Macmillan nurse to call in 3 days to see if the increased drugs have deadened the pain as opposed to merely making him drowsy - and is considering a spinal block - done under anaesthetic - if the new drug regime does not work.
We both felt a great sense of relief and Stephen feels he is in good hands - with people who care and know what they're doing - and understand his anxieties.
The hospice is situated on the outskirts of town in lovely surroundings - trees and flowers abound everywhere. There is a sense of calm within the building and they have some very pretty curtaining in the lounge areas, which would make a jolly nice quilt. Talking of which, I may use one of my Singing Garden quilts as a raffle prize with proceeds to the hospice as a thankyou for the help they are giving Stephen and myself. Will give me an incentive to get it layered and quilted.
Oh dear . . .
We have another appointment at the hospice tomorrow morning - with the complementary therapy team - to see if massage and reflexology will benefit Stephen and help him to relax.
They also provide residential and day care which provides respite for both patient and carer.
I feel a load has been lifted from my shoulders - by the sheer fact I will receive support in helping Stephen to deal with this dreadful disease - and that he can now enjoy what is left of his life without the excruciating pain that has devastated him these past weeks.
2 comments:
Babs, holding you both in my prayers. It's very hard but hopefully pain control can help you both enjoy time together.
Fiona.
I am glad that you are both able to get some help, just knowing that it is there can often relieve the anxiety.
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